National Palliative Care and End-of-Life Care Information Priorities

Closes 8 Nov 2020

Opened 8 Sep 2020

Overview

What is this consultation?

This is a public consultation on the draft National Palliative Care and End-of-Life Care Information Priorities. We are seeking your input and feedback on this consultation draft.

What is the purpose of the National Palliative Care and End-of-Life Care Information Priorities?

The purpose of the National Palliative Care and End-of-Life Care Information Priorities is to help guide efforts in palliative care and end-of-life care information development over the next 10 years. It provides a vision for the future of national palliative care and end-of-life care information and will be the first of its kind in the palliative care and end-of-life care sector.

The vision is that national data will support people with a life-limiting illness, their families and carers, health professionals, health services, policy makers, and governments to make informed decisions based on timely and comprehensive information. This will help to ensure that all people living with a life-limiting illness receive the care they need to live as well as possible for as long as possible.

Background

Information is essential infrastructure for effective delivery and promotion of palliative care and end-of-life care. Like other infrastructure, it requires long-term planning and prioritisation of investment.

Robust national palliative care and end-of-life care data is a key goal of the National Palliative Care Strategy (Australian Government 2018). Many of the Strategy’s commitments require a more coordinated approach to national information, including better use of current national data, building new national data assets and new methods to monitor and report on the impact and outcomes of the sector.

These priorities, in conjunction with the National Palliative Care Strategy, are intended to guide planning, investment and action by governments and other stakeholders. They are not intended to be an implementation or investment plan. Many critical issues are beyond the scope of this document, including IT developments and the rapid expansion of private online health providers and “apps”. Government health services need to work within this fast-changing environment, but this document cannot define the planning priorities for those sectors.

Who we are

These draft information priorities have been developed by the Palliative Care and End-of-Life Care Data Development Working Group (PC EOL WG), a subcommittee reporting to the Australian Health Ministers Advisory Council (AHMAC)’s Health Services Principal Committee (HSPC) of the Council of Australian Governments (COAG) Health Ministers. Please note that following the cessation of COAG on 29 May 2020, the current committee structures are under review by the Department of Prime Minister and Cabinet.

The PC EOL WG includes representation from public and private health services, non-government organisations, and key national organisations involved in palliative care and end-of-life care policy, planning, data and reporting.

Why we are consulting and how your views will help us

The PC EOL WG seeks your input and feedback on this consultation draft. We would also welcome your views on priority areas for improvement or action.

Your feedback will be used to inform the final document for publication. Where consent is provided, all feedback will be published on this site at the end of the consultation period.

Need more information?

If you would like any further information about this consultation, please contact PC_EOL_WG@aihw.gov.au.

Before starting, please download the National Palliative Care and End-of-Life Care Information Priorities document using the related information link at the bottom of this page

 

Start the consultation here:

Audiences

  • Anyone from any background

Interests

  • Research